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ivy's mom
Regular Member

Date Joined Jul 2006
Total Posts : 62
   Posted 4/9/2008 5:19 PM (GMT -6)   
Hey I have a question for the lupus folks.  I am usually over in the crohns area because  my daughter has crohn's dx.  I have been having eye infections in both eyes ( worse in my left) since feb. of this year.  Four so far and it has gotten so out of hand that I ended up in urgent care twice.  The eye dr asked if I had a high sed rate or crp and I said yes because I have serum neg. RA.  She said it may not be RA but more likely Lupus.  I am scared to death.  I go to the specialist next Monday and I was wondering if other people have had problems with there eyes from lupus.  I know both RA and Lupus can cause dry eyes and so many of the same symptoms that how will they be able to tell me if it is lupus or RA.  My ANA has been both negative and positive before.  Besides the eyes I have been so fatigued lately.  Well I should say exhausted.  But I am not sleeping well.  I do have fibromyalgia too but I am scared of the lupus.  I have lost most vision in my left eye.  It is like looking through wax paper.   If anyone can guide me and ease my fear please go ahead.
ivy's mom

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/9/2008 6:30 PM (GMT -6)   
Hi Becky,
    I have alot of problems with my eyes and do get infections from time to time. I have Sjogrens as well as lupus, RA, Fibro and other things. I just went to a new Opthamologist to get a second opinion on the eye problems I have been having for the last few months. He said the Fibro was causing my problems, so I'm really confused right now since my sjogren's numbers are really high. My rheumy and other eye doc thinks its the sjogrens.
   I hope you get some answers and relief soon. Get as many opinions as it takes! Please keep us updated and take care. I'm sure some others will be along soon to help you out as well. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 4/9/2008 7:10 PM (GMT -6)   
Hi Becky, I don't have any problems with my eyes but just wanted to give you some (((hugs))). I have never heard of lupus affecting the eyes but I have come to realize lupus can wreck havoc on any part of the body. I sure hope the doctors figure things out soon. Please let us know how your appt goes.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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