The first sign of my CNS lupus was numbness and tingling in my hands and feet. A vague sense like you get when you sleep on your hand wrong from impaired circulation. And my feet are often burning and swollen up my ankles which is thought to be the vasculitis part of the wide and varied lupus puzzle. They look scalded and pale often at the same time. And neuro flushes of such cold chill in my bones followed by sweats of such unpleasant intensity, I am still bitter that my PCP and GYN were certain I had... 1. asthma 2. depression 3. menopause at age 43 4. nothing wrong.... because other than Hashimoto's and a pos. ANA my blood work was all normal. I was falling 3-5 times a week, yes, at work, in the back yard, and finally I went charging into the dr. to say no I am not depressed I am p#*#*&(##)
p.s. neurontin helps immensely, too and of course prednisone is my miracle cure. After trying the month long tapers that weren't pleasant, (40mg/30/20/10) I am now living on 5mg of prednisone every day and thanking God for it.
God knows, even if I don't....
CNS Lupus 2005, APS
Meds: Plaquenil, Neurontin, Thyroid, Voltaren, Aspirin, Atenolol and Norvasc, Prednisone prn.