Exercise and lupus

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Regular Member

Date Joined Mar 2008
Total Posts : 39
   Posted 4/11/2008 7:10 PM (GMT -6)   
I was thinking of starting to exercise again. I saw people talking about water aerobics. Are there any other exercises anyone can recommened. Keep in mind, I use to(last year) exercise 7 hours a week and now I get winded from conversations.
My family keeps saying nono    No,dont do anything, but Im not ready to give up and lay down forever. I am 25! Geez.
I use to love running but I think my knees would beat me up big time after one attempt.
Who the heck are "THEY" and why is everyone asking them these questions?
"THEY" sure do have a lot to say...

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 4/11/2008 8:01 PM (GMT -6)   
Walking is helpful, as is resistance or weight training but you have to start EXTREMELY SLOWLY and not as frequently as you would like. Begin with say 15 minutes of walking once a week. For resistance or weight training begin with the least resistance/weight possible and only do like 5 pulls or 5 lifts (reps) then wait a week. If at any time you feel worse- not just sore or tired from the activity- STOP. Consult your doctor before trying any of this to make sure you can do any activity. Also if you are in a flare DO NOT try any of this. Activity in a flare can make things much much much worse. You do need some kind of exercise, but need to be very careful. I personally think physical therapy in the pool at arthritis temperatures (around 98 degrees) might be a better place to begin.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

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Date Joined Dec 2004
Total Posts : 8198
   Posted 4/11/2008 8:53 PM (GMT -6)   
Hi Jenn,
   I agree with Redrose. Talk to your doctor and start very slow. I have been doing some easy exercises with one of those bands that have the handles. You can put it around the door knobs and do upper body exercises. I also do some standing stomach and leg exercises, but I only do a few of each every two or three days. I'm slowly working my way up. My body is handling it pretty good so far. I have some minor fibro pain but nothing major.
   There's alot of simple things to do that will help tone and strenghten your body. I have the "Turbo Jam" workout dvd's. Of course I can't keep up with them and do all the things they do, but I take bits and pieces and make my own little short workout.... :-) .  The music is good!!
   Good luck with your exercising and take it slow and easy. Please keep us updated. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 4/11/2008 11:09 PM (GMT -6)   
I've heard water aerobics are fantastic.  Very easy on the joints.  The other ladies are dead on about taking it slow.  If I exercise more than 10 minutes a day I feel physically sick.  I've been trying to increase the exercise over the past 8 years, but it just isn't cooperating with me!
For some reason, over exersion can cause our lupus to flare up.  Even if it's healthy exercise.  So take it slow and easy.
Good luck!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 4/12/2008 11:06 AM (GMT -6)   
Moderate exercise should not cause a problem and will help your overall health and well being.  If you are on prednisone weight bearing exercises have a lot of value to stave off bone loss.  Just listen to your body and back off if you do too much. 
I work out 4-6 times a week and my workouts are 1-2 hours and usually vigorous.  If I am tired I do less or take the day off.  Never had any problems other than falling asleep in my chair at night.
I believe that many chonically ill people talk themselves into doing less and suffer as a result.  Exercising or even taking a short walk is difficult when you have weakness or chronic fatigue but if you can make yourself do it, even on a very modest scale, you are usually better off.  Of course, discuss it with your doctor.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 4/13/2008 9:44 PM (GMT -6)   
Hey Jenn,

My exercise had to begin with an extremely SHORT walk. 1/4 mile on the treadmill was really pushing it. Some days, walking down the driveway for mail and back was a good workout. Your rheumy can help you get start but do start SLOW and build very gradually.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/14/2008 9:59 AM (GMT -6)   
You have gotten great advice from everyone. I used to be a runner too and it was one of the hardest things for me to give up. I have just recently been able to start to exercise and found that some light walking is agreeing with me. Just make sure to listen to your body and don't push yourself too hard. I find that when I push too much, I end up feeling really sick and then I have a set back and end up not being able to exercise consistently.

Good luck with starting exercising again.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined Mar 2008
Total Posts : 89
   Posted 4/14/2008 2:46 PM (GMT -6)   


I don't have energy for much either.. and then there is the pain and all, but I started a kickboxing class back in January and I have to say..the repetitive movements have kept me from getting too stiff. Don't you find that if you sit for too long, that when you get up, you are just too stiff to function? I think movement, gentle movement can keep the flexibility up.. also, the increase in oxygen to my muscles seems to give me a bit more energy later in the day.

If you doctor approves it, I say start with some slow walks. See how you feel, and then maybe you can branch out a bit. My legs sometimes feel like lead but I force myself.


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