Posted 4/12/2008 11:25 AM (GMT -7)
I've been having this stupid horrible groin pain which coincides witht areas where I have lost pigment. It feels like my legs are being torn off, even on pain meds. It hurts really bad. I know I have some calcified lymph nodes there. Also I wondered if the non-destructive pain I get in my knees, esp. after being out in the sun, can also affect my hip joints? I had an x-ray two years ago and it looked fine. The only place my arthritis is bad and destructive is in my back. Can this pain be lupus joint pain? it's only on one side now, but I get it on the other side sometimes, but not both at the same time usually.
On another note, I hope you are all doing well as can be. I have an appt with Mayo hepatology/transplant center for evaluation and am hoping they will get to the bottom of my autoimmune disease, polyendo dysfunction, and do the back surgery I need. Other than that, I've been really good! I've been focusing on my liver for a while and I'm glad I did because it is getting me to Mayo, and that will help.
I missed all of you but just thought I should get another perspective on my illness(es) for a while and focus on the liver, since I am seeing signs of it in my son.
Love you all, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn