Please, PLEASE do NOT be tempted!! Stay, oh please, stay OUT of the sun. Sunscreens make my rashing out worse, the itch intolerable, the flu like malaise ruins outings, sitting at the hotel sick is NOT fun and I learned the hard way. Trust me. Check out Coolibar on line for clothing that is UV protective. I think Lands End and several sports stores have it, too. I like big baggy light fabric sweats with long sleeves. I limit the sunscreen to my cheeks, hands and tops of my feet. Yeah, yeah, flip flops don't offer much sun protection, that' s for certain! I swim in long sleeve tees and my favorite vacation thing to do is sitting in the sun, true, picture the ocean, the beach, a lounge chair, and this gramma lying covered up with hoodie, sand, beach towel, while the surf crashes over me and my chair and I feel like I am in heaven. I also make sure my family knows I am happy when they go adventuring without me, because I have such exhaustion and weakness, sitting is about my limit. When we went to Disney World my husband and girls pushed me around in my w/c, not that I can't walk, but so I could conserve my strength. And DW is so disability friendly and their crew so helpful and respectful. And I got big, dark sunglasses that really helped reduce my headaches. Happy travelin,
p.s. I take a light weight polar fleece lap sized blanket with me in a tote to cover arms or legs when I am in cars or trolleys. Even the sun coming through the windshield made me so rashed and sick..... sue
God knows, even if I don't....
CNS Lupus 2005, APS
Meds: Plaquenil, Neurontin, Thyroid, Voltaren, Aspirin, Atenolol and Norvasc, Prednisone prn.