Just a quick update to let everyone know that my daughter is having good days, we're surprised. She had not improved quickly enough for the doctors so they started her on once a month Cytoxan.
The Cytoxan was done almost a month ago along with Mesna and Solumedrol, her next treatment is in 2 days. It wasn't all that bad, she tolerated it well with a few days of sleep afterwards (yes, she got up every 2 hours to go to the bathroom), and occasionally needed Compazine to take away some mild nausea.
The good news is that not too many days afterwards, the swelling all over her body died down and she started feeling near normal. She's extra careful not to expose herself to people who are sick now that they're bringing her immune system down lower.
For those facing Cytoxan for the first time, it's not all bad news -- it's played a huge role in her feeling well!!
Take care, I'm learning so much from this forum!