Babs . . . you are so sweet! Thanks for the concern.
Stacie . . . AKKKK that's awful . . . I don't want to think that I can't eat the raw veggies and fruit. But I'm sure watching to see what is the culprit. I can't believe that so many people live like this and can't get out of the vicious cycle. My gut issues has lasted about
a month at a time max. Sometimes just a few days. But I've been heading them off with meds. Your comment about
salads rang some bells too. When I was working, I had to come home early from work because of instant stomach problems after eating at a salad bar . . . I thought it was the preservatives . . . never thought about
it being the salad. I had to quit eating salad out. I actually didn't even make it to the bathroom sometimes and had to come home and take a bath . . . ewwwwww. Never dreamed it was Crohn's! Just thought it was a stomach bug or sensitivity. Thanks for the tip on pears. I'll have to stock some in my pantry. Do you do ok with bananas. They always seem like a safe food for me.
Hi Sherry . . . thanks so much for the offer of info. I'm sure I'll need it. I was actually prepared to learn that I had UC . . . . but I wasn't prepared for the CD . . . I just figured if it was Crohn's it would have showed up in previous c-scope. But that old scope DID show diverticulosis and inflammatory bowel and that darned doc told me to eat more fiber and come back in a few years for another scope. So . . . all along I've been ignoring all this pain, bleeding other issues. The new GI was really mad when I told her what the previous doc said. She thought I misunderstood him until she looked at my insides. She said the worst inflammation is in the ileum and in the large intestine right where the large and small intestine connect . . . which is the most common hang-out for crohn's. I'm waiting on IBD7 test results and she gave a script
for Entocort which she is pretty sure she'll have me fill after she sees the IBD7 results.
I do have a question about
the Entocort . . . if you might know about
it. I was feeling pretty safe with it when she said it concentrates in the gut and doesn't give the problems associated with other steroids . . . but what I'm reading online sounds like it really can still cause bone loss, weight gain, high blood pressure and diabetes. My prescript
ions is for 9mg/day x 3 months with 4 refills. I hope that doesn't mean this will be a maintenance drug. I wouldn't mind taking it for a couple months and then tapering . . . but I'm scared of taking it for a long time.
As luck would have it . . . I'm starting another flare with the pain and frequency . . . she told me to take the medrol dose pack that I have on hand . . . so I'm hoping this flare will disappear. I've made myself some potato soup as Navy suggested and had that for dinner last night and b'fst and lunch today. Mornings seem to be the worst.
Thanks again for your kind offer . . . its so nice to know where to get help.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Crohns, Diverticulosis, Sjogrens
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator