I am one of those rare and weird cases where all the normal lupus blood work is worthless. If I weren't on Imuran a check of my liver function would be the fastest way to see if my lupus was becoming active again. But, I am on Imuran and my liver function will remain normal as long as I am even if my lupus becomes extremely active. Yep, I got that really rare liver involvement. It is mild and entirely managable so it may be a stroke of luck. Considering the course my illness has taken it is one of the rare ones. I will ask to have my thyroid checked out as pregnancy can screw with the thyroid just as much as lupus can. I am so tired and weak at the same time. I sleep and sleep and sleep but it doesn't do anything for the fatigue or weakness. I know a short burst of steroids would make me feel better while I am on them, but it would also cause water retention. I will definately be calling my rheumy today. I am up right now because I had to pee and realized I was hungry and thirsty. I have been lectured for not eating enough by my doctors, the dieticians, and my husband so when I am hungry I try and eat. I had a bagel with cream cheese for a snack. For some insane reason my food preferences have become completely insane this pregnancy. Worse, I am developing an aversion to meat and really need to get the protein in. Oh well, I just want the pregnancy to end safely for baby and me. We knew there was a very high probability I would lose my remission at some point and it has lasted longer than any of us had dared hope. Maybe we can push it back again, in December I began developing neurological symptoms again so we added Imuran as I needed off the prednisone, if we up the Imuran or add prednisone back in short term. I will let my rheumy decide what route to take. The OB docs do not think the weakness is from the pregnancy, especially with my checks getting pink in the usual pattern. It only happens when I have to be exposed to sun- less than 5 minutes at a time, am unable to sleep, or am feeling particularly painful.
I just wondered if weakness was a sign anyone else had ever had that they were beginning to flare because for me it has always been pain and fatigue. Unfortunately, pain during pregnancy has been a pretty constant things since I had to discontinue the celebrex. I really miss NSAIDS and evoxac. I want to thank everyone for their support, encouragement, and willingness to share whatever they personally have experienced with weakness. I will likely be requesting PT after I recover from having the baby (since it will likely be pool therapy I need to be finished bleeding). I need to rebuild my muscles and range of motion.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec