muscle spasms or twitching

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New Member

Date Joined Jul 2005
Total Posts : 11
   Posted 4/19/2008 8:21 PM (GMT -6)   
Does anybody have weird musle spasms in the legs, shoulders, or arms? I've been having them for a few days now and they won't stop. I was wondeing if it was lupus related, Does anybody know?
Diagnosed:Lupus,Lupus nephritis,severe anemia (April 2005)
Kidney Biopsy April 2005
Blood Transfusion July 2005
meds:Cellcept,Prednisone,ARENESP Injections,Plaquenil,Protonix,Avapro

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 4/19/2008 9:59 PM (GMT -6)   

Hi Sarah, Yes I get those also. It almost feels like I got mexican jumping beans in my muscles. It will last for a few days and then go away as quickly as it comes. I'm not sure if it's Lupus related or not. Some times I think it is caused by my meds but since I take the same meds all the time it'skind of hard to figure out why it would come and go like it does. I know this question has been asked before so hopfully others will come up with their info on it.



God Bless
Lupus like symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4.,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 4/20/2008 11:30 AM (GMT -6)   
Hi Sarah,
Yeah, I get those too. I can really jerk around sometimes with it.  Freaky.  I have brought it up with my rheumy, and she doesn't really have an answer for it.  Another symptom to add that we don't understand.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/20/2008 12:52 PM (GMT -6)   
Hi Sarah,
   I get them too but mine are random, lasting for a few minutes here and there over a two or three day period.
   I did have tremors for awhile that caused some major jerking that was mostly in the legs. Sometimes the head and arms would get involved. It was weird. I was put on a seizure med to control them but, I'm not taking it now and no problems lately.
   Sorry, I don't know the answer either. Like Ginny said, just one of those things. Hope you get some relief soon. Take care and you will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Regular Member

Date Joined Feb 2007
Total Posts : 102
   Posted 4/20/2008 7:08 PM (GMT -6)   
I have something like that in my toes, they twitch all the time, more at night when I sitting . It drives me nuts

Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survior.

New Member

Date Joined Jan 2007
Total Posts : 17
   Posted 4/20/2008 7:59 PM (GMT -6)   
My hands get twitchy a lot and I suspect prednisone has something to do with it.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 4/21/2008 1:04 AM (GMT -6)   
I have had the twitchy/jumpy/spasmy issue for years, long before I ever went on meds. No doctor has ever figured out a cause and the medications that help with them have worse side effects. It is annoying but I have learned to live with it over the years.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

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