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Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 4/20/2008 6:41 PM (GMT -6)   
Well, I had some pretty yucky news this week at my nephrology appointment. My kidneys are no longer in remission. My creatinine clearance on my twenty four hour urine was a whopping 24%!  My protein is back up to 2200mg.  Oh well, it was fun while it lasted!  I am so swollen and miserable!  Hope you all are doing well.  Haven't felt up to being on line much lately. My red counts are extremely low.  Waiting for my procrit to come in the mail!  That'll help alot!  God Bless You all,  Judy

New Member

Date Joined Jan 2007
Total Posts : 17
   Posted 4/20/2008 8:04 PM (GMT -6)   
Hope everything turns out ok. I'm going through a second round of lupus nephritis myself and am being evaluated for a transplant in the next month. My creatinine is 3.9 right now. I take aranesp. Have you always taken procrit? Hope to chat with you online sometime....I can definitely relate to what you are going through right now.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 4/21/2008 12:50 AM (GMT -6)   
(((((((( Judy ))))))))) (((((((((Haji )))))))))I'm so sorry about your devastating news. Prayers for you both!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Crohns, Diverticulosis, Sjogrens

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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/21/2008 9:51 AM (GMT -6)   
(((((Judy))))) I'm so sorry to hear about your kidneys. Do you have any idea what the next step will be for you?

Haji, I'm also very sorry to hear that you may have to get a transplant. Anything dealing with organ involvement is scary. You are both in my thoughts and prayers.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined Jan 2008
Total Posts : 30
   Posted 4/21/2008 11:59 AM (GMT -6)   
I'm sorry about your kidneys.  I hope the dr gets you feeling good again soon!
Lupus and Sjogrens Syndrome since 1995

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 4/21/2008 12:39 PM (GMT -6)   
My doc decided after my last biopsy that there was too much scarring to aggrassively treat my kidneys anymore. Then, I had cerebritis which was aggressively treated and subsequently put my kidneys into remission. Now, i'm out again. So, we will just watch it and when it declines enough i'll be placed on dialysis and then a transplant list. My kidney function has been up and down for years! I'm just praying it goes back up again.

Haji, i'm sorry to hear of your news. You will be in my thought and prayers. I have taken procrit a good bit in the past. Keep me posted on your situation. God Bless you all, Judy

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/21/2008 1:26 PM (GMT -6)   
Judy and Haji,
    I'm sorry to hear you both are having severe kidney problems. My heart goes out to you both. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 4/22/2008 8:49 PM (GMT -6)   
I went today for an ultra sound of my legs to rule out dvt, chest x ray and arterial blood gases (ouch!) I should hear tomorrow. I finally got my procrit in today and had a shot! yeah! Maybe that will help me start feeling better. Love you guys, Judy

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 4/22/2008 9:04 PM (GMT -6)   
Judy & Haji, I am sorry to hear you both are having problems with your kidneys. You both are in my thoughts and prayers. take care

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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