Posted 4/27/2008 12:57 AM (GMT -6)
My situation was a bit different then most, I think. When I had my transplant I wasnt in complete renal failure, my kidneys were getting worse but they were still filtering so I didn't need dialysis, and I told them I wouldn't do it anyways, but I did start having trouble with some foods, and I stopped drinking, not that I drank alot, but even one drink would make me feel sick and hung over the next day. And as I was waiting for test results and screenings and everything they do before they schedule a transplant, I was not really eating much, and when I did it was more veggies and fruit and cereal because my body wasnt handling meat very well.
Now a question for you, for your anemia, are you taking iron supplements? And are you aranesp because of insurance issues. I was taking procrit (epogen) before my transplant and with those injections you have to talk a lower dose because of your kidney issues. And I ask about the iron supplements because when your anemic you may also have a problem getting the oxygen to attach to the blood cells, the iron supplements help the oxygen adhere to the blood cells. So if you are not feeling better that may be a reason.
And I just want to add that I have no medical background but these are the things that the doctor told me, and I am just repeating what I was told. I just dont want anyone to think I giving out medical advise, because I know that it is against the rules.
So Haji, you may want to talk to your doc about this, and also talk with your transplant doc and pointedly ask them if they will do the transplant even though you are in a flare.
good luck, and if you want to compare notes or just have other question, my email is on my profile.
Hugs and prayers, If it was easy being a lupie,
~Suzanne~ the whole world would be one
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-tumor cerebri '07, AVN ankles and hips '07, depression '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, melatonin, celexa, pepcid, oxycontin for pain