My twin told me not to make my message to you yesterday too long as you wouldnt read it. I say to her - I think they will they are GREAT on this site!
I'm always right.
I just feel you are all so great, I recognise a few individuals who are very special to me but you all are special, I find it hard to hold onto the names and context, may be due to my cognitive depletion.
PAIN, folks, is there life after dx of sjogrens and lupus? Or is it all horizontal?
Is the pain being mentioned here of the burning type, severe burning eg in palms, feet joints etc.
Have any of ye got it running down legs like nerves on fire?
The DF118 are making me so nauseous.
I am trying to be brave, but I never was.
Twin went out to shop for plants and things and when alone I became afraid and felt awful sick, tired and oh, oh PAIN.....
Do any o ye ask why?
I just ask why I and all of us and my twin witl Parkinsons have to struggle so hard.
I cant put this in context of a god at all.
when I am with twin and she and I are feeling good together it doesnt seem so bad, alone its woeful and the depression awful..
xxAnn with lots and lots of love.
Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream