Feeling Pretty Yucky

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Regular Member

Date Joined Mar 2008
Total Posts : 75
   Posted 4/28/2008 2:16 PM (GMT -6)   
Hey guys,
How long does a typical flare last?? Ever since I was sick last week I've been exhausted and today I've been getting terrible dizzy spells and heart palpatations. Im getting a little concerned because I feel like Im dying.   sad   It's really weird I feel like Im in a haze and I can't concentrate on anything. I seriously just want to sleep for days!!! I wanted to take my daughter to the park yesterday but I just couldn't find the strength. Also someone told me you shouldn't drink any caffeine while you're in a flare because it will make it worse. The only thing that even motivates me a little is my 1 cup of coffee in the morning. Any truth behind that??
Thanks Natalie

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/28/2008 5:03 PM (GMT -6)   
Hi Natalie,
    I'm sorry your still feeling badly. Hopefully, things will turn around for you soon.
    I drink caffeine everyday whether I'm flaring or not. It doesn't seem to make a difference in my symptoms.
    Did your doctor increase any of your meds to help get this flare under control? I hope you get some relief soon. Hang in there and take care. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 4/28/2008 8:37 PM (GMT -6)   
Hi Natalie,
Yeah, I think Babs is right. It really depends on the person when comes to caffeine.  i find that if I have it, it only makes my issues with my prednisone worse.  They kind of give me the same yucky symptoms.  Shaking, jitters, anxiety, that kind of stuff.  Are you drinking lots of water?  Nature's best remedy!!
Can you get in to see your rheumy soon? That dizziness thing would be a concern for me.....
I hope your night is going better,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/29/2008 9:29 AM (GMT -6)   
Natalie, I'm sorry your are feeling so sick. I would call your doctor and see about getting in, esecially with the heart palpitations. It's better to be safe than sorry. Flares can last anywhere from a few days to a few months. It's best to try to take really good care of yourself and not push yourself when you are flaring, or it will just keep going on and on. I know how hard that is to do, especially as a mom of young kids. My youngest was 2 when I first got sick, so there were a lot of times I couldn't rest because I was taking care of my kids. I have always hated it when I have wanted to do things with my kids but have felt too sick.

Hang in there and I hope you start feeling better soon.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/3/2008 1:31 PM (GMT -6)   
Hey Natali,

Sorry you are feeling bad. I see you haven't posted in a few days and wondered how you are feeling by now???

Hang in there and keep us updated!! OK?


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 5/3/2008 3:11 PM (GMT -6)   
No one can really predict how long a flare will last. It could be days or months depending on you and your treatment regimine. You need to take it easy and sleep when your body says to or you could prolong the flare. See your rheumy ASAP to see if anything else can be done. Make sure you eat properly and are getting enough vitamins and minerals as malnutrition can make a flare worse (I spent years researching malnutrition's affect on the immune system and it is not cool).
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

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