Hey Beth, just wanted to touch base with you about your thrombocytopenia. I have that too. It can often be the cause of a B12 deficiency. Is that your case? If the thrombocytopenia is treated successfully, the B12 deficiency will often correct itself. Treatment for thrombo is usually prednisone. I respond REALLY well to prednisone. It's helped all of my lupus/MCTD issues.
I'm really surprised you're not on a treatment at all. Thrombo can be very serious if left untreated. I would recommend a visit to your rheumy to start treatment for you.
I hope you're having a good day,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus