That is a conundrum isn't it? I know that sometimes my feet and ankles do have that awful pain in them, but it all seems to go away rather quickly. Never enough time to address it with my doctors.
The fact that you are now off prednisone and the pain is back leads me to believe it might be inflammatory, and that little 1mg dose was enough to stave it off! It's amazing how powerful even 1mg of prednisone is! Is it worth a try to go back on just 1mg of pred and see what happens? I'd run that idea past your rheumy first though. Don't be afraid to bring up these issues. It might seem silly to you, but your doctor might not think that at all. Best to check!
Let us know what happens okay,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus