I don't know, you guys, but Lynnwood, it just seems I get these male rheumies (except for my sweet and really good local one) but at these medical centers, these kind of arrogant guys that think everything all the rest did was wrong and I'm just a hysterical woman. But last I checked, hysterics didn't cause skin problems like pigment problems and rashes and joint destruction and the other things we get, along with the high ANA.
The ortho couldnt find the plate and screws in my neck MRI either, though I could, so there you go on that. I had a hard time convincing the ortho that I didn't do neck surgery on myself!
I sometimes think they either confuse the charts or just mess with me. I've heard such good things about
Mayo that I can't believe that they are really this silly.
Like you say, as long as they let me keep getting treatment. My local rheumie wants me to try Rituxan when I get bad again and I need the liver guys to give me the okay and also want to make sure it's the right type immunosuppressant for my problems. It seems so, but it also seems the plaquenil is finally working, so maybe just try to maintain on that.
Sorry you had to go through that test too Rosie. I have something called increased repetitive potentials and I don't know if it is a demyelinating problem or just fibro or atrophy of the muscles from disease. I guess they will tell me.
I am having a new symptom with my should which is pain in the lymph nodes under my arm and in my left breast and I'm a little scared so I have that to bring up. Maybe the pain is just those lymph nodes calcifying like my ones in my neck and maybe they just have to be removed and biopsied. This is embarassing but I've been lactating a little very rarely, like a few times a month. I think my hormones are just messed up now. But now I have to bring all this up with them.
My mom's immune system broke down recently. They say it just doesn't work anymore. They have her on steroids but she refuses to see a rheumie and get tested for lupus and other stuff. She "forgets" to ask them, which doesn't help my sister or me or our kids in finding out what is going on. I feel so bad for her though. It really makes you realize how important treatment is.
Well, I'll let you know how far they go and all. The good news is that I don't need a liver transplant now, but I have made contact so they have me on record and will watch me. I don't want one until I'm at death's door. I've heard some scary stuff--let me know if you want info on this.
Take care and thanks for the support. I hope that we all get a break from our "fibro"! ;)
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn