Posted 5/6/2008 8:47 AM (GMT -6)
I have vasculitis too. I am just coming out of a big old lupus flare up as well. I was on 20mg of pred to get rid of my symptoms - all of them exactly as what you described yours as being. Feels like the flu, but you know it's not!
With my vasculitis, the symptoms are those splinter hemhorrages on my nails (little brown lines on the ends of your fingernails), petechiae (little tiny pin sized red dots on arms, legs, chest, tummy, etc), and under the skin type rash called Livido reticularis. I have that on my wrist, thigh and ankle. The skin rash stuff is really common with vasculitis. Did you get a name for the type of rash you have? What does it look like? Mine is sort of "lace" looking and mottled. Hard to describe.
I'm noticing the rash not being as purple as it was a few days ago, but it never fully goes away. Even when my lupus was in remission, I could see it slightly.
I hope this helps. The medrol pack should help you feel better quickly. I'm on so much prednisone right now that I'm a wigged-out, jittery, anxious, mess!!! I need to start tapering down - NOW! So give it a few days and hopefully the flu like feeling will disappear.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus