Posted 5/8/2008 2:10 AM (GMT -6)
((((Barbara)))) I hope you find a good second opinion doctor and I'm glad that you are doing it and strong enough to do it. The only names I know are the usual Cleveland Clinic, Johns Hopkins, and Mayo but my experience with Mayo Jacksonville has been less that great, but I'm a hard patient, have lots of physical problems but bloodwork not obvious.
Anyway, on the liver transplant side, I heard University of Penn Medical Center is good for liver transplants, which means they are probably okay with other stuff and might be worth finding out about. I have heard good things about them from my liver forum. Take care and I hope you find someone good with the knowledge and the fight to get done what you need.
Take care. As far as cancer goes, Moffitt in Tampa, Florida is highly rated for multiple myeloma, which is a relatively rare cancer and they do a lot of stem cell transplants. My stepmom says you have to be very careful what tx they give you because chemo/radiation can mess up your stem cells. I don't know if this is true for blood cancer. I'm so glad you are doing better and taking the bull by the horns here.
(((hugs))) and I hope you find a great doc.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn