Jenn, I'd never heard of this but it intrigued me, so I looked it up. Apparently it's caused by an infection. Don't know if you've seen these sites, but they do have a fair amount of info on them:
Hope you can get some new information here on a very interesting condition.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.