No one has responded to my chronic muscle myopathy with any great 'gravitas', but my twin's neuro thinks I should have a bigger biopsy.
All my primary doc said was 'ah well, that means nothing' and the neuro in London, in the hospital who didnt notice my muscle wasting just passed it off with "oh with all the meds you have been on, the steroids etc, you can expect it and the autoimmune stuff etc'.
I really wonder do the docs actually understand mobility difficulties, and sickness or do they see the half dying and the healthy and forget the various grades in the middle.
I feel as if I am half dying and yet all the doctors are so blaze.
Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream