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Ann Ireland
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Date Joined Apr 2006
Total Posts : 511
   Posted 5/11/2008 6:02 PM (GMT -6)   
Hi rosie, didnt know you had crohns too, do you have it bad? what your docs say about having crohns and sjogrens together? I heard over here that if you have a mild form of crohns you are more likely to develop the sjogrens etc.
I have a mild form of crohns, relatively speaking with one resection in 02. But the sjogrens is bad, real bad.
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/11/2008 10:56 PM (GMT -6)   
Sorry your sjogrens is so bad Ann. A resection?? I would call that pretty bad. But I'm glad your crohn's has been more controlled since your resection. I hope it STAYS quiet too!!

I've had GI issues for at least 10 years on and off. In the last year, I've had some pretty severe "attacks" where I should have gone to the ER . . . but the pass after several days and so I just "hide". I don't like to be around anyone when I am in extreme pain . . . so I've kept it to myself mostly. Anyway, I've finally HAD to get some help with this and my Rheumy sent me to a GI doc. She dx'd me almost 4 weeks ago (colonoscopy with inflamation at the ileum/cecum) and biopsies). But I've not had some of the awful problems I hear of from members of the Crohn's forum. AKKKK scary stuff!!

My sjogrens is very manageable and the lubricating eye drops feel really good. The relief just doesn't last too long. Luckily, I don't need them every day. Some days are ok and some days are very dry.

I hope your new docs get a good treatment plan started for you!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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