I am extremely sun sensitive. It seems to have a cumulative affect too. Meaning, I have to add up sun exposure from day to day over any few days.
I'm less sensitive last and this year . . . but for several years, even a trip down to the mailbox was too much. Sun block does not seem to help my rashes, nor does overcast.
I wear long sleeves - long enough to cover my hands - even when I drive. I stand the collar or wear the shirt backward so my neck is easily covered.
I use a golf umbrella as much as possible.
You can get UV rays even from the reflection of sand and water.
Many lupans are not quite that sensitive. And I go in and out of severity. But I have several wide brimmed hats and I am no longer bashful about
whipping out that umbrella.
Yes it does cause disease activity in many of us.
I do find some creative ways to enjoy the outdoors. I hike in a beautiful woods with great overgrowth (but still chose early evening to hike). Hubby created a little campfire area in our backyard and we have the grands over for "campfires" several times each summer. We roast weinies and marshmallows and I've kept it really simple so it doesn't turn into a difficult task. I grab the grands last minute we go to see a sunset and play at the park during this sundown time. They find it a blast and I do it last minute so I'm sure I'm up to it. They love the last minute dash.
I also found a great "skin suit" that I wore on our Mexico vacation this year. It covered hands to ankles and worked great while I was in the water . . . but I hid in extreme shade the rest of my outdoor time. Hubby found a great spot of shade on the beach and embellished it with our beach umbrella. Taaa daaaa!!! But in years past, I don't think I could have pulled that off.
I hope you find a good way to enjoy your summer!!! Don't let these difficult new rules stop you from enjoying life. Just find the loopholes and work them!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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