Posted 5/30/2008 12:19 PM (GMT -7)
My daughter who is 6 has cutaneous lupus. Thankfully so far she's not extremely sensitive to the sun. She can be out there an hour or so with significant spf 70, a bucket hat and whenever possible, long sleeves.
She's only been diagnosed a year now, which I'm sure like everyone else, has been a very long year for me. I'm always looking for new spf products and new protection.
I've actually come up with a product that may help lupus patients - necessity is the mother of invention right - well, I was buying a bathing suit ($53 I might add) for my daughter that has an spf 50 in it and I was thinking well, how do I know that the spf 50 is enough when she's out there?? Is it good on top of the spf 70 I put on her? Isn't there a way to tell how bad the sun actually is?? On a cloudy day, is it any better to have her out then?
Then I researched more about UV and found that the uv of the sun at any given time may be low or high depending on so many things! For instance, the time of day, location, weather, etc. To which (sorry the long story) I came up with a bracelet that tells you the severity of the sun's uv and can help you properly protect yourself with the correct sunscreen!
They are called Sunsign Bracelets. They're white when inside with no uv and turn to light, medium and dark purple depending on the uv intensity of the sun. This is great for those who are sun sensitive such as those with lupus as well as anyone who is being conscious of the sun!!
I'd love to know if any of you would like to know more about my bracelet. It's really been a great thing with my little girl and knowing more about the sun! I'm working on my website and will have more info to follow. I was always worried about my daughter and the sun, now I know a little more about how bad or mild it may be outside.
I don't want to sound like I'm a big marketer here - I'm just a mom looking out for my girl and hope that I can help others like me being aware of the sun!