Posted 5/14/2008 6:38 PM (GMT -7)
I'm looking at being started on Rituxan myself and I have the same questions you have. Apparently Rituxan has now been approved for Sjogrens as well, or so my rheumie told me. I talked with my pharmacist about it and he said that the newer drugs are usually better tolerated, but since he doesn't dispense it, he doesn't know a lot about it and he doesn't know anyone offhand who had experience with it. Actually, he wants to borrow my dvd and information pack.
I wish that they didn't have to give it in big shots, because you can't undo it if you have problems. I know it can be hard on the liver and kidneys and certainly if she has problems with these organs I would want a specialist to say it's okay before taking it. Right now, I'm asking my hepatologist (liver doc) if they think I can take it.
I won't consider starting it until after the 22nd of May. I can let you know how I do. I'm extremely sensitive to meds due to my liver disease and ut problems. I'm going to ask for half an infusion at first to see if I'm allergic right off, or if its going to be bad, if the rheumie will do it. I'm sorry you and your mom are going through this. I wish you the best.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn