I have sjogrens (sp), liveda redicu..sorry i'm not sure of the spelling. They are currently running tests for lupus, Gordes syndrome and a few others.....
I lost almost all of my hearing at age 26 , while pregnant It wasnt until i saw your posts that i recall telling a doctor about 7 yrs ago that fluid came out of my ears (which he wrongfully thought was bath water). so much for making them understand!
Now however, after wearing hearing aids for overr 20yrs, i can now hear in my left ear? So yes! your hearing can flucuate. Unfortunately mine came back when this new type of autoimmune process began (the one they are checking for now).
I only have about 15 percent of hearing left. I simply went to a hearing doctor and did the standard tests......it will show if you have any diff in hearing!...i never went to an ent, and from what ive heard from experience with family, they've never been a great help. They can put you in a machine , shake you up and then type: vertigo on your records, but then again , we already know we have that...
I would think the fluid probs from S's syndrome seems like a logical thing. Sudafed can be a nono as it is drying. I saw this on my S's pamphlet from Rheumy at Cleveland Clinic this past weekend. (not saying it didnt work).
I fly on long flights and ive experienced no problems (flights up to 12 hrs in length). Fluid intake is important as is getting up every few hrs to move around to avoid potential blood clots (happens more often than most think).
I feel badly for those of you who experience these things. The person who mentioned hitting walls with shoulders...might need to have a neuro test that , it can be realted to other things than vertigo..
hope all feel better soon!
Every day brings us closer to what we reach for .........in all things.