I have never had as many issues at one time as you are dealing with. I was stuck in a recliner for about
two years. Went from being able to backpack 35 lbs for 11 miles, to vegging in the recliner and unable to walk even 1/4 of a mile on the recliner w/o causing more trouble.
I did find a way to help others. I had a telephone ministry (being there to listen to others who were lonely or sad . . . for hours at a time). I learned all I could about
this disease and how to pace myself. The purpose of each med I was taking (9 different rx meds at the time) and I spent a lot of time at this forum helping others and receiving much needed encouragement.
I really feel like attitude gains me LOTS. It can push people away or cause them to gather toward me. I carved out time to rest and turned off the phone during those times, so that I could sleep soundly w/o interruption. I made sure to organize my pills into two weekly boxes and I made it my business to take them on schedule.
I found ways to feel productive (knitting and crocheting gifts, listening to books on tape, etc.). I took advantage of my few minutes of energy and they really do add up to a productive day when I use them wisely . . . . putz in the kitchen for 5 minutes, rest for 20, putz for 5 minutes, rest . . . and so on.
I found entertainment that thrilled me. Sunsets and campfires when I was up to it. These events got me outside but not in the sun. If we look, there are still many beautiful things in the world that we can be part of.
I'm sorry you are having such a very rough time. I'm not saying that you should do what I do . . . just answering your questions and hoping that you can find a little joy in each day. Sometimes, its just seeing a cute little bird on my feeder outside. Humming birds are back!!! YEAH!!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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