Things were so bad yesterday that I lost it and threatened to throw myself in the brink if I didnt get the help I so needed.
Virtually no services here for me and no help from anyone really. I rang every politician in the area and said if something wasnt done for me they would find a body in the harbour!
I felt THAT bad and was weeping and wailing but gee, my zest for life is SO GREAT I'd never do that and i think it was more about that zest, and lack of zesti that made me make stupid comments, the police were at my door at least five times today to see if I was ok, I was out though, can you imagine the embarrassment.
I am finding it increasingly difficult to keep show on the road and having to do everything on my own with now one to help.
My plaquenil script came today! At last! I have been prescribed 200mg daily. from whats been said here it sounds little and I feel so poorly, but at least it is a start. The doc in London says I am a mild case!!
I wont blaspheme but if this is mild I hate to see a bad case!
I would love to know peoples experiences of this drug especially initially when they start it.
My sister wants to come over and get instruction on how to put pics on her computer etc. so I told my counsellor that I will cheerily say 'a lesson' for a chicken stew!' does that sound reasonable, this is the woman who says she hasnt time to make food for me.
I thought we might work a bartering system!
I feel a bit better right now after crying all day with my counsellor and feeling so awful. I feel physically awful but today my councellor told me about a place called 'the sanctuary' where there is a beautiful garden and a meditation room and also a place in wicklow called Chysallis which is a retreat centre.
I plan to try bring some peace into the equasion as everything is so full of anger, bitterness, regrets etc.
I need the time out.
xx for now.
marji if you read this I email you pics but they must have gone into the ether or else someone else got em. I shall try again now that I see you said you have put your email on your profile.
xx to ALL MY BEST FRIENDS HERE AND THAT IS ALL HERE!
Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!
100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.