Hello there. Wow you are having a hard time. I know how it is. I have been screaming for good health care here and threatened to jump in front of a truck, but I meant it. They almost locked me up for that. I was soo darn ill and couldn't get one ounce of help. I live by the ocean also and am wondering if we're in the same town. If you are in California, they have a program called IHSS and people come to your house, cook food for you and clean free of charge. You need to contact your local Social Services department and ask what kind of program they have like that. Most states do. You get to hire who you want or choose from one of their providers and the state will pay them directly. It has helped me alot.
Now, I know you love your sister but umm , that is just not right. I would not be helping anybody in your condition and by ALL MEANS people should be helping you. The sanctuary sounds like a nice place to go. I bet we all would love to join you :)
And I think I just gathered that you are overseas from me, but hopefully they have some kind of programs like here that can help you. Maybe someone in London would know. I'm sorry for the rambling but I am just trying to be helpful. I know how hard all of this is.
Luvs and hugs to you. I hope you feel better soon dear.
Lupus, Raynaud's, APS (cardiolipin), Protien c+s Deficiancy, COPD emphysema and who knows what else!
May The Lord Bless everyone that all have some relief of symptoms