Most of you know I have lost two children to an unknown metabolic disorder. When Alexander's newborn screen came back normal I was so relieved. For a very short time. He is throwing up, arching his back, gagging, and screaming like he is in pain during/just after feedings. This is a pattern I have seen in the past, one that leaves me in tears just thinking about it. I have called the metabolic clinic at Childrens because they are the best in the state plus they are less than an hour away. Their nurse practicianer is getting the state mandated metabolic screening results and talking with one of their doctors to figure out who I need to see to get to the bottom of this. I hate feeling like this. All I want is for my baby to be okay. I do not know what to do beyond what I have already set in motion. Alexander sees his pediatrician tomorrow morning so maybe that will help. I just don't know.
I am sorry, but I don't know who else to confide all this in since hubby is at work and I am falling apart.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec