First, the thanks: Thank you all for being here! You scare the bajeezus out of me and talk so
openly and are so supportive. On the hours of the days when I am willing to believe my diagnosis (denial is fabulous, when I can manage it!
), this is all so so so incredibly helpful.
Now, the question: Has anyone else refused plaquenil for fear of losing your eyesight? Has anyone had vision problems from taking it?
Everything I've read says there is a danger of losing your eyesight from long-term use of plaquenil (as in, the way lupies need to take it) if you have certain eye problems, which I do have. I understand the risk is small, but so far when I weigh possible blindness (I only have useful vision left in one eye as it is) vs the pain and fatigue and word-losing memory lapses and rashes which comprise the sum total of my symptoms, the choice seems obvious. I'd rather be an achey, tired, thesaurus-dependent sighted person.
The next gallon of blood I give up will be devoted to tests for kidney involvement, which I suppose might tip the balance toward YES if positive. But until then, I'm at NO.
All advice gratefully accepted, if not necessarily followed.
Often she hid at the sight of wild beasts,
forgetting what she was; and, though
herself a bear, shuddered at sight of other bears.
-- Ovid, Metamorphoses