I know you guys will understand

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Regular Member

Date Joined Dec 2006
Total Posts : 102
   Posted 5/26/2008 10:03 PM (GMT -6)   
A flare started very suddenly tonight. I can't remember the last time I had one hit me this quickly. I had a busy weekend (hosted a baby shower Saturday morning and it took most of Thurs. and Fri. to clean, cook, prepare for it). Sunday, I did nothing except go to the grocery store with my sister. Today, we had family over for a cookout. I spent most of the afternoon on my feet, making the dessert and all the sides. Right around 7, just about when we were getting ready to eat, I got that awful "pulling the plug" sensation, as though all the energy drained out of me. I had to go lie down while DH finished prepping the dinner. While I rested, so many of my joints were aching.
I felt a little better after dinner, but now I'm trying to muster up the energy to take a shower before bed. I'm so tired, though. I just don't feel like dealing with all the activity required to wash, condition and rinse my long hair. I need to just get it cut off again, but everyone keeps saying how pretty it is long.
This is my kids' last week of school, and there's so much to accomplish! I'm praying that a good night's rest will send it on out of here. I just feel so guilty...I promised hubby some "quality time" tonight because it's been so long since we've made time for us, and I just want to go to sleep. I feel so bad that this stupid illness is always interfering with life. sad
Ok, so there's my pity party for the month. Thanks for listening! Short-flare vibes would be appreciated!
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/27/2008 2:54 AM (GMT -6)   
((((((( Kari ))))))))

Sorry about the flare.

The "pacing our energy" game is such a difficult one to learn. Sorry your body didn't hold up to the long weekend. *sigh*

He he he he . . . I found the greatest tip for "quality time" with hubby . . . although it might be a bit tricky with youngsters still at home (maybe they could visit a neighbor or friend). I try to arrange that special time BEFORE dinner. Obviously it wouldn't be before a party like you you had at your home . . . but even on a weeknight. There just seems to be more energy before a big meal and I'm just more certain of how I feel. I really try NOT to make promises ahead of time, because the scenario you've described as happened way too often here.

I hope you and hubby get some great time together soon!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 5/27/2008 10:19 AM (GMT -6)   
(((( Kari ))))) so sorry about the flare, but it does sound like you got a lot done. I pray its a short one and you start feeling better with some extra rest.

I like Rosie's idea, will have to remember that one. I too don't make promises, DH has been disappointed too many times nono and it makes me feel so bad.

Take good care of yourself today!

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/27/2008 12:18 PM (GMT -6)   
(((Kari))) I'm sorry you are flaring and it stinks how little it can take to actually start a flare. My kids are also winding down the school year and their last day is tomorrow. In some ways I'm really ready for them to be done with school because it means no more alarm in the morning and less stress, but it also means less rest for me during the day.

I had a rough weekend too. I live in Iowa and we had the horrible weather with the tornadoes. It got so hot and humid I could hardly stand it - my pain was worse than it has been for a while. It was the first time in quite a while that I felt drained of all my energy. I also had that guilty feeling since my husband ended up pretty much taking care of the kids and the house all weekend. I also feel guilty that it was our wedding anniversary last Thursday and my hubby and I haven't had any time together and I just collapse at night.

I think you are entitled to your pity party and I just joined you with one of my own. I don't think a lot of us lupies give ourselves enough credit for all that we do and for the inner strength we have to make it through these things. Hang in there and I hope your flare is gone by the time your kids are done with school.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Mar 2008
Total Posts : 89
   Posted 5/27/2008 12:50 PM (GMT -6)   
Yep.. we all understand. Doing too much always sets me off too. I do understand about the hubby thing too. I try not to make promises anymore because I usually cannot keep them and it always makes me feel so horrible in the end. Gawd knows.. we don't need to feel any worse than we already do. Hope you are feeling as bit better today. I do find that if I get a flare, if I get rest quickly instead or forcing myself to work through it, it usually ends pretty quickly.


Regular Member

Date Joined Dec 2006
Total Posts : 102
   Posted 5/28/2008 8:51 PM (GMT -6)   
Thanks for the replies, ladies. I'm still struggling along; able to do some things but mostly still feeling icky.

It just helps to be able to share with people who will understand and not just think I'm whining!
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain

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