Roll call . . . . How's everyone doing????

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Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/27/2008 4:08 PM (GMT -6)   
Hey everyone!!

Would love an update from each of us . . . all in one topic. I know several are having some difficult issues right now.

I hope each member will jump in and update us!!


Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/27/2008 4:14 PM (GMT -6)   
OK . . . I'll go first.

I washed my floor!!! Yeah!!! I've cleaned 'some' of my windows too . . . Yeah!!

I recently got an almost certain dx of Chron's (biopsies, inflammation) . . . but I don't have genetic markers so its not likely that it will cause some of the really severe stuff that crohn's is know for. I have a prescription for Entocort (steroid) that releases mainly in the ilial cecal area (where my inflammation is bad) . . . but I don't need to start it until I have another GI flare.

I'm really wondering if I've had crohn's all along and that's what has caused all my other joint and skin issues . . . because I haven't had the blood markers notorious for Lupus. ??????

Bad news is, I can no longer use NSAID's so I'm seeing my rheumy to find out what I can use for my joint/body aches. Good thing this hasn't been too bad lately!! I'm not sure what there is beside tylenol . . . and *shhhhhhh* pred. Hoping to find some safe alternative.

I haven't had as big an issue with sun as I had for several years. Last summer wasn't quite so bad either . . . Yeah!!!

I'm hoping to get an update from each of you!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined Mar 2008
Total Posts : 89
   Posted 5/27/2008 4:25 PM (GMT -6)   
Thanks for asking!

I am off the prednisone now! YAY!!! Noticing some weird tremors in my arm but I got those each time I dropped a mg on the pred so I am hoping this is the last time I have to go thru that.

Found a really good sunblock. FINALLY. I have been getting a bit more sensitive in the sun, but could not find one that did not burn, or cause a rash. Mary Kay's Sunblock 30SPF is water resistant and it has not caused me any breakouts thus far. Does not burn going on either. Seemed fairly inexpensive at $14.00 for 4 ounces. I use it only on my face but it can be used all over.

Aches and pains are not too bad right now. I can't complain. I have been a tad moody lately.. but that could be from the lack of pred too. Trying not to let my mood take over. Right now I am more frustrated with friends that my symptoms and that's a first. Totally off topic but friends mean a lot to me, and I get upset when I don't feel as if I am being appreciated. Brings me down!

I'll end on an up note.. it's a short week! Yay!


Regular Member

Date Joined Oct 2007
Total Posts : 323
   Posted 5/27/2008 5:58 PM (GMT -6)   
Hi Everyone: I'm on quinacrine which I think is throwing off my thyroids. My stomack has been bothering me for awhile now, I see my GI next week rhumy does't think it's the med. I would hate to get off if since my skin is doing very good on it.I'm not on preds no more but can't get the weight off. I guess I should'nt complain since so many of you are still on it. Rhumy been giving me shots in both shoulders cause of pain. When I see GI I guess he can tell me why stomack is bothering me . Then see my pcp. But other wise doing ok. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 5/27/2008 6:09 PM (GMT -6)   
Couldn't be better.  Continuing my physical recovery and playing golf, working out, and practicing Tai Chi regularly.  Not bad for someone totally crippled just 2 years ago.
Still on meds although minimum doses of prednisone and imuran.  Maybe next year my docs will try and taper completley off both.  Their feeling is that my case might have "burned itself out".  I can only hope.  My biggest problem is what might happen with Barretts esophagus which was caused by polymyositis...not bad eating and drinking habits.  No sense in worrying and I get scoped annually to make sure nothing bad has developed.
Still have significant muscle issues due to muscle cell loss.  I will never be 100% but I have already recovered well beyond what anyone thought possible.  Have the most problems in my back muscles which were decimated but they have come back slowly.  Hope to convince my doctors to authorize physical therapy again next month so I can have a professional address the weakness and pain in my back.
Otherwise, life is good and my wife and I are enjoying the second chance at a fairly normal life.
Hope everyone else is doing well.  Ever the optimist and pigheadedly stubborn.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

Regular Member

Date Joined May 2008
Total Posts : 58
   Posted 5/27/2008 6:48 PM (GMT -6)   
I had another EMG on my right arm, From the way the Dr. was talking things are worse than I expected. skull   But since my son just got me tickets to go visit him in San Diego more than likely I will have to wait till I get back for the results as my neurlogist  I will also see my Rumy the day after I get back. I think I'm fighting a flare but with the gas prices I figure I better get my trip to San Diego in now as the one carrier that has a direct flight there will not be here but a couple of more months then I don't know what I'll do.
But when I get back I also will have the hearing for my SS disablilty. It has to be good news The attorney's say so anyway but I'm so afraid to get my hopes up
Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/27/2008 7:18 PM (GMT -6)   
Great idea Rosie. It's nice to see updates on everyone. I have to say I continue to be amazed by Bill and how far he has come and the amazing attitude he has - you are an inspiration Bill.

I am happy to say that for the most part, April and May were really good months for me. I actually had some energy and was able to do more and rest less. I was even able to take some walks to start some light exercise. This last weekend I haven't felt the greatest though. We had lots of bad and weird weather come in (cold then really hot then tornadoes) and I got hit with pain and fatigue that were worse than they had been for a while. As I wrote in another post, I'm getting a colonoscopy on Thursday to make sure lupus isn't causing some bowel problems I've been having. Hopefully it will all go smoothly and I will be feeling better again soon.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 5/27/2008 7:50 PM (GMT -6)   
I am trying to wean off the prednisone because my blood pressure is really high and the water is not coming off. I start water pills tomorrow morning. I am healing from the c-section. Alexander is doing as well as can be expected with untreated reflux. I am tired all the time but that is to be expected too. I hope everyone is doing okay. I will update more in a few weeks.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/27/2008 9:07 PM (GMT -6)   
Sorry for all who are struggling or waiting for test results for appropriate treatment options.

Wow . . . its great to get updates from everyone. Some are doing so well . . . YEAH!!!! Gives me energy to see so many positive posts. I'm thrilled at the progress so many of us have made. YEAH!!!

Hoping EVERYONE will post an update . . . don't be shy!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 5/27/2008 9:20 PM (GMT -6)   
Health is doing well... limits on sun&heat continue, and flaring/fatigue is relatively minor and associated with major stress. (Stress => Like when my sole income - Private Disability Insurance - is cut off w/no warning.)

Had cut down to 7mg prednisone, bumped up to 10 mg for a bit after the insurance/no income news arrived, but started the slow ramping down today...

Info from drs, ins company, SSD, attorneys, etc. all in wait on "them" mode, so I'm just hanging out trying to think of ways to make money grow on trees....


Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/27/2008 9:24 PM (GMT -6)   
Lynnwood . . . *sigh* sOooo sorry this sOOO not fare.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 5/27/2008 9:40 PM (GMT -6)   
I am doing ok, once I got back on Plaquenil the weird chest pains and muscle issues stopped. Just dealing with daily stuff that lupus throws my way..... fatigue, some GI issues, sores in my nose (which is new for me) and some joint pain but nothing compared to what it use to be, the MTX is really working for me and I am so thankful. I go see my rheumy in 2 weeks so I hope she doesn't want to change things around.

I have had some good days and been able to spend some quality time with hubby and daughter so that has made me really happy.

Take care all (((( group hug ))))

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 5/28/2008 6:46 AM (GMT -6)   
Hey there. I am doing ok, keeping busy with the flower beds in between rain showers and snow and cold. The weather sucks and I guess that is contributing to my aches and pains. Right now my fingers hurt the worst of any part on my body, and my doctor is sending me for hot wax therapy which, once they teach me how to do it, I can continue at home on my own. She said it should help with the pain and stiffness in my fingers and hands so hopefully it will help.
We bought a new puppy, a miniature shih tzu named Cheeko. He was 2 lbs when we bought him a month ago and he now weighs 3 lbs. He should weigh no more then 6 pounds when he is full grown, and he is the love of my life right now, catches on to tricks really quickly when he realizes there is a treat waiting for him at the end of it,lol.
My oldest daughter will be attending her prom this Friday night so that is exciting and is giving us something to look forward to as well. We will have a h ouse full of kids here this weekend, her friends who are attending prom with her. They are going by limo, so that is the coolest for them.
Thats about it in a nutshell here, trying to keep busy and trying to ignore the pain.
Hope everyone is well and enjoying the spring weather better then we are here in Ontario Canada.
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyeoid Disease 
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

Regular Member

Date Joined Mar 2008
Total Posts : 110
   Posted 5/28/2008 7:07 AM (GMT -6)   

Hey everyone!

I just moved across country by car. Took three days total. Aside from being completely exhausted for a week, I actually fared very well. The last time I took a long road trip, I couldn't move for three days because my joints were so swollen and sore. I completely expected that this time. I'm without insurance for the next two weeks, so here's praying I stay well during that time.

dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day
wife, mother of three

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 5/28/2008 10:04 AM (GMT -6)   
Great thread. I've been away so much that I'm enjoying hearing how everyone is doing.

My health has been pretty stable for some time. Am on the lowest doses of prednisone and cellcept that I've been on. Continue to be gluten free and if I slip up just a little I really pay for it so eating well has made a big improvement in the way that I feel. My biggest struggle is the sun and heat so I use sunblock and stay out of the sun. Keep a hat in my car. My life is more stress-free than it ever has been and I hate to hear what you're going through Lynnwood. That's real stress and I send prayers your way.

I get out more than I used to but still stay close to home most of the time. Still haven't moved and these stairs are killing me. My left knee is giving me fits and it's hard to walk on it, much less deal with all the stairs in this house. I don't know if it's lupus related or osteoarthritis. I'm going to have it looked at but for the time being I have it wrapped.

And I have a new puppy. A dachshund who's the sweetest little thing.

I wish everyone good health and a happy summer!

Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined Apr 2006
Total Posts : 169
   Posted 5/28/2008 10:57 AM (GMT -6)   
Hi everyone, seen new DR, gave me anti-depressent for my IBS, she said it is real strong so only take it at night. I'm more scared of the side effects, this is terrible. I stopped working part-time due to daily pain. I'm having another CT scan in June. Still waiting for SSD hearing date, applied on Aug 06'.
I will keep you all informed of how all turns out.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 5/28/2008 1:39 PM (GMT -6)   
This is great to read up on how we're all doing! 
I'm doing pretty well.  coming down slowly on the prednisone after that flare up I had at the beginning of May. I'm down 1mg to 9mg now.  Changing my prednisone dose makes my blood thinners all wonky, so I"m dealing with that again.  But overall I'm doing quite well.  No major issues to report except that nagging dizziness thing I brought up in a previous thread.  I have it a bit again today.  WEIRD.....
Keep on keepin' on as they say!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Ann Ireland
Veteran Member

Date Joined Apr 2006
Total Posts : 511
   Posted 5/28/2008 2:41 PM (GMT -6)   
Had a really DREADful week but started back on antidepressants two days ago. Knew Ihad to.
The Plaqeunil I am tolerating but seem much more tired and very nauteous and unable to eat yesterdy and today. Been doing too much.
pain in hands feet and backs of calves, all prickly and burning very bad at present.
Doing daily gentle stretching exercises and have sorted the right wrist which is great.
In bed alot now.
Just watered all my indoor plants for the night.
Another chihuahua comes on Saturday to join Ana and my twin comes on the 9th June for three weeks.
Weather like winter here in Ireland, heater on yesterday.
Mood a bit more positive but cant really cope with much by way of people, noise and everyday thing. I go mad with stress if life isnt simple and predictable.
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 5/28/2008 5:02 PM (GMT -6)   
Ann, if your stomach is upset by the plaquenil or other meds take them at night- my rheumy said it was fine to do this to avoid nausea and even okayed me taking the full 400mg all at once at bedtime- actually I think several others here do this for stomach issues. The plaquenil can take as much as 1 year to work completely- most see results within 6 months, but you will not see any change for several weeks (6-8). You have been doing a lot and going through a lot emotionally which likely is why your fatigue level is worse. Try and get some extra rest and take it easy. I wish you luck with the new chihuahua and your twin's visit. Sorry you are having a hard time of it.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

Regular Member

Date Joined May 2008
Total Posts : 57
   Posted 5/28/2008 5:45 PM (GMT -6)   
Hey Everyone. Everything for me is still a bit confusing and yet new. Its very stressful for me and my family. I hate seeing my parents stressed out about all this ecspecially me being there only child. I noticed how I have to control my stress though or it will result in lots of pain and fatigue. The only thing different from my last post was my first real rash.. not very exciting. We are not sure what it is yet but its very distracting and a itchy burning feeling. Im at 15mg. Of Pred now! Therefore the moon face is slowly disappearing and pretty soon I will be able to enjoy some sugar now and then :-) Glad everyone is doing well.
Medications: Prednisone 20mg. Plaquenil 200mg. Naproxen (for pain). Multivitamin. Calcium and Vitamin D. Fish Oil.  
15 years old. Lupus, Raynauds, and Hashimotos.

Veteran Member

Date Joined Jun 2005
Total Posts : 541
   Posted 5/28/2008 6:33 PM (GMT -6)   

Checking In....

Been feeling good on again and off again.  I just have to take it day by day.  On my good days though I do feel much better.  I am very greatful for that.  I am having a problem with my blood work lately.  Either my wbc or rbc will be low.  They seem to be taking turns.  Can't tell if it is from the MTX, the disease itself or something else.  Both rheumy and primary doc are watching me.  In the meantime, the fatigue seems to be worse, probably from the counts being off.

I am off for summer vacation right now and slept till noon today.  I am hoping to get stronger and better over the summer.

Glad to see so many are doing better.  It is great to be feeling better.

Take care.

Mary Ann

** MCTD,Fibromyalgia,Raynaud's June 2005
**Sleep Apnea - February 2006
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 5/28/2008 7:21 PM (GMT -6)   
LOL Mary ann/nana bee I love your signature about he is God. I say somthing like that all the time. What a releif it ain't me ! Amen to that.
Anyway Rosie I am so glad you did this. Even if I can't read them all at one time it's still good to see them all in the same spot. I have to admit i truly miss being herelike I used to. I just can't seem to get it together. I was already sick than about 3 weeks ago the rheumy took me off the plaquenil. This past week has been just awful. My back knees and now worst of all I think my pnemonia is back. Doctor put me on 750 mg of levaquin and 20mg of predisone. Even though I took 30 today just to be able to walk to the living room. To top it off I'm moving the 6th and all I'm gonna be able to do is watch. I put 3 drawers of clothes in a box and that was all I was good for. We had a tornado warning the night before last and I had to go to the neighbors storm shelter which was of corse damp and moldy. Sat for 2 hours. Everyone down there was older than me by at least 20 years and they had to help me to get down the stairs. I actually had to scoot down the stairs on my butt and my heart felt like I was having a heart attack. 7 inches of rain and walked home in a flood.
Anyway I wish I had better news. I just wish i could come here and be a support. The best I can do is keep you all in my thoughts and prayers. Yes I am still using my corn bags. I don't think I can get by with out them. If I'm not better tomorrow I'm gonna go to hospital. I know they will give me at least some i.v. steroids.
Anyway I hate to sound like such a bummer I promise one day I will come here when I'm doing well and catch up with all of you.
Love ya all
thoughts and prayers
God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!

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Date Joined Aug 2005
Total Posts : 590
   Posted 5/28/2008 7:32 PM (GMT -6)   

I am here. I am so so. I am still at Mayo clinic. It has been 5 months. The one doc would not listen to me, he said all was psychological, and would not listening. Come to find out 3 months later, I have a bulging disc at L4, and a fibroid cyst the size of a softball. Scheduled for surgery June 17th. He had me flare up and then was not listening. Now I am paying the price for being severely ill. On the upside I have several good docs helping me and he has a formal complaint filed against him. They are now listening to me and taking me serious. I am in bad shape but starting to get there. I have Osteopenia in my spine, slight in hips. Several other things, Migraines caused by sun, many other causes of them, etc.

I am also exercising :)

Hope you all are well.

sle 01 w/cns/autonomic 11/05, photosensitive 04/04, sjogren's 01, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, multiple allergies 6/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06-gone, TIA 5/06, Porphyria 5/06, Vitamin D deficiency 4/07, Iron deficiency ferritin 8/07, Chronic migraines 01. Meds- baclofen 40 mg, prenatal tabs, potassium, calcitriol 50 mcg, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 400 mg, darvocet 100 mg, percocet 5mg, amitriptyline 10mg, chromagen, topamax 150mg, Amitriptyline 10 mg. <font color=...></font> Purple Text

Regular Member

Date Joined Mar 2008
Total Posts : 60
   Posted 5/28/2008 10:08 PM (GMT -6)   
This is a good idea to have everyone update in the same thread!

The steroid shot I got a month and a half ago has definitely started wearing off, but generally, I've still felt better than before it. I did a dumb thing last weekend and went on an outing w/some friends. We were mostly in the shade and had a picnic lunch and did a trail...what I didn't realize was that the trail was hiking down part of the mountain and back up again! I thought it was just going to be a leisurely walking trail through the woods. I actually made it without too much pain, just a little in my knees and hips, but my lungs felt in worse shape than my joints. The weird thing was, after I got home, it was my arms that hurt! I was so worn out that I literally slept for almost 3 solid days, and I feel sick and achy all over now. Yeah, it was a stupid thing to do, and I'm paying for it. {Note to self: will not make that mistake again.} Gotta get used to living this different life.

I'm also having this relentless lump or tightness in my throat. I've had it several times before, and it gets miserable after awhile. It's like I can't relax it. I used to think it was anxiety-related, and maybe it is, but I don't know? It also feels like I'm having some drainage in the back of my throat, so maybe that has something to do with it too. I keep wondering if could be a thyroid thing or something, though (except that my thyroid tests always come back normal).
~ Bee

God is the strength of my heart! - Psalm 73:26

Post Edited (doodlebee) : 5/28/2008 9:11:14 PM (GMT-6)

Regular Member

Date Joined Oct 2007
Total Posts : 185
   Posted 5/28/2008 11:52 PM (GMT -6)   
I have been feeling much better in the joint pain area.... I'm just taking one pill a day of my meds... but I have for the past two weeks been so tired.
I seen to just want to lay around on the sofa in the afternoons... I've never been this way before... I've been tired before but not like this.. I have no strength in my hands or legs...

I will have my grandson for one week during the day so I'd better get some energy soon... He is three.....

I'm in a tizzy about my Dr... I live in Arkansas but I have still been going to the Dr. in Tulsa that gave me the that gas is so expensive, I'm really needing to find me a doctor closer to my town... that would be in Ft. Smith or Little Rock... I am from Oklahoma and I do get to go and see my Mom when I go to the Dr. but the expense is getting a bit much....Oh, I love my Dr. in Tulsa...
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