Posted 5/31/2008 9:42 PM (GMT -6)
((((Lynnwood)))) Sorry about this. I think our lousy economy is making everyone crack down harder. I found out that I have diffuse atrophy in my brain, most people do as they age, but there is more in me in my forties, I have the brain of a sixty year old. Most CAT scans, especially here in the state of GA where most everyone has brain damage, at least where I live, they don't note it, even if it is abnormal. So you might get a CAT scan with contrast asking them to look for atrophy. If you have any kind of sleep apnea, COPD, or anything, you probably have some atrophy. This will help.
Another thing would be to get sensitive testing like I got at Mayo, and they were pretty cheap, where it showed I had the antibodies, even though they weren't elevated. The sensitive tests were done at Mayo. It showed I had not enough antibodies to have the test read positive by the tests accuracy standards, but that I do indeed produce the antibodies, which is abnormal. My rheumie told me they aren't high because I'm being treated and everything is in good shape.
That's the other important point. Of course you are doing better, you are being treated and probably in remission, but you can flare up too.
Then taking pictures of rashes, etc. and all. Even fibro and chronic fatigue are known to be valid disability problems, without the lupus. My fibro is really horrible and fatigue too.
I don't know if Emory can do those really sensitive tests like Mayo does. It would be a good way to see what is going on. Also, perhaps looking at your liver, a common cause of fatigue, through an abdominal ultrasound, might show some stuff too.
I hope that you can get the testing you need to keep things going. I lost out on my disability and was needlessly homeless. It was awful. I used to stay in the mental hospital sometimes and that helped my case some as well, not that being homeless doesn't make you go nuts, it can. So can having diseases that aren't treated.
I hope you do okay and solve this problem. It would be nice to see someone benefit from their paid disability, since I got ripped off.
Take care and I will pray for you.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn