Went to the Rhumey today..

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Regular Member

Date Joined May 2008
Total Posts : 57
   Posted 5/30/2008 8:31 PM (GMT -6)   
So things are looking better! Im going down to 7.5 mg of Pred on Tuesday.. wish me luck. I just went down to 10 mg today but since I now have Shingles (which is very painful) I have to go down on my pred faster. Its very frustrating to go through all this at once and in highschool. I havent experienced much joint pain at all latley and Im not as tired anymore which seems to be a very good sign! Hope everyone is doing well, I just wanted to update.
Medications: Prednisone 20mg. Plaquenil 200mg. Naproxen (for pain). Multivitamin. Calcium and Vitamin D. Fish Oil.  
15 years old. Lupus, Raynauds, and Hashimotos.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/30/2008 10:23 PM (GMT -6)   
Hi bigsnafer,

Glad you like your rheumy. Sorry you have to taper so fast. Singles sounds pretty painful . . . I hope it doesn't last long for you!!

Wow . . when the fatigue gets better, you've really improved!!

Keep us updated.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 5/30/2008 10:26 PM (GMT -6)   
Hi hun, I'm glad things are better for your today. When you mentoned the shingles and tapper off the steroids  I was wondering if the doctor was going to increase or decrease, but I'm glad it's decrease. I hope you don't have any trouble with 7.5.
thanks for the update
God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 5/31/2008 7:49 PM (GMT -6)   
Hi bigsnafer, bless your heart, I could not imagine dealing with lupus at your age. Do you have a supportive family and friends?? Glad to hear the taper is going well, I hope you continue to improve. Take good care of yourself and keep us updated on how you are doing.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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