Oh ((((carol)))) I hope you feel better. Tell your friend she is definitely right about the provigil. A really great drug. It opened up my bronchial tubes and lungs, it is a vasodilator, and when I first took it I coughed up what I normally aspirate at night and I could really breath, better than any asthma med so far. It was great. It gave me my brain back and energy with no steroids. I have COPD (chronic bronchitis) that is pretty mild and it helped me as much as advair or more. The COPD can be related to liver, liver disease causes asthma sometimes due to increased histamines.
So I"m here for crazy steroid chat! I'm ready to nominate the inventors of provigil for a Nobel prize. What a good drug.
Carol, I have taken 20 mg but I'm sure some of the shots I got were twice that. I've also taken pretty large amounts of dexamethasone before, which seems to have little effect on me except to reduce swelling in my back. I've had shots that were so strong they made my ears ring and made me hear things and feel really weird, definitley too strong.
Can something you are taking actually be hurting you more than helping you? You would know more than me. It doesn't seem like they get you much better and I always hope there is something more they can do without putting you through the steroid side effects.
I was ready to beg for them when he gave me provigil, and it helped, but not for what you have. I think he's trying to separate steroids for mental and mild symptoms vs. for more major flares. Thnks so much for your help with that.
I hope they get you better managed somehow so you don't have to take so much steroids. Will keep you in my prayers.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn