Posted 5/31/2008 9:25 PM (GMT -6)
This is kind of TMI, but I thought it was worth asking since I don't see the rheumy again until the end of June, and I'll probably have another cycle before then.
Warning, if you get queasy easily about blood issues, you might not want to read this!
My last cycle was very clotty. I've had clots before, just small ones, like nickel-sized, and only on my heaviest day. This last period, I had clots nearly every time I went to the restroom. One afternoon, I passed a clot thinner than, but about the same size as a deck of cards. (I know, disgusting...sorry!) For the following hour or two, I was soaking a super tampon every twenty minutes. Thankfully, that tapered off, and I never saw another clot anywhere near that size. But, I even had a couple of dime-sized clots on my very last day, something that has never happened. (Having that huge clot has never happened before, either...not even when I miscarried a few times.)
I remember testing positive several years ago, with another rheumy, for anticardiolipin (sp?) antibodies, and antiphospholipid syndrome or whatever that "sticky blood" thing is called. As far as I know, my current doctor has never tested for that, or if she has, she hasn't said anything about it.
Could that be increasing and causing the clotting? I know that only a doctor will know for sure, but there's so much information here...I just thought it was worth asking if any other ladies have experienced something like this. I know that I'm often borderline anemic on my bloodwork, and probably would be anemic if anyone tested me now after this period from hell! LOL
Input/insight/etc. appreciated. Also, would you make an appointment with your gyno? I love my OBGYN but I find that she's pretty clueless when it comes to the autoimmune stuff.
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain