I took myself off of it last year due to stomach issues. It took me a while to figure out that the reason I was feeling like crap again all the time was because I did that. (Yeah, I blame lupus brain fog for my slow thinking! LOL)
Now I'm back on it, just 200mg a day because I'm still not brave enough to go up to the recommended 400 mg dosage. It's only been a couple of weeks and I don't feel any better, really. But in retrospect, I realize that my long flare-free time last spring and summer was probably due to the plaquenil. I'll be glad when it builds up...and I won't take myself off it again.
Hope you are able to go back on it soon and/or figure out why he took you off in the first place!
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain