Posted 6/5/2008 10:11 AM (GMT -6)
Hippi, that is so unfortunate. I hope the flagyl works for you and doesn't upset your stomach.  It never seems to end does it.... All the issues. We're here for you if you need to vent - but you already know that!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Posted 6/10/2008 11:06 PM (GMT -6)
I never knew colitis was an AI disease -- never even thought about it -- my mother had SEVERE colitis in the early 70's. I never, ever made any association between that and Lupus. Something new for me to look at.


Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Posted 6/11/2008 1:01 AM (GMT -6)
This does stink. I'm really sorry. I guess the good thing is that you have been feeling better lately (as far as increased energy etc. goes) and I hope that continues. Did the dr. say what kind of colitis or where the inflamation is? I hope the flagyl gives you good results while you wait for july to get here.

xoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia

Posted 6/11/2008 5:31 AM (GMT -6)
Hippi.. I'm sorry you have to deal with this, hope the meds. you are taking don't make you sick. I was diagnose with IBS this week.I go for a colonoscopy sometime this fall. Wish you well!!!! Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     

Posted 6/11/2008 8:28 AM (GMT -6)
Greetings Hippi!

Sorry to hear that yet another issue is in store for you to deal with. I take flagyl often and it does not make me ill. It seems my frequent sinus infections respond well to this antibiotic when combined with one other antibiotic (oops, brain fog has me again!). Anyway, when my problems with lupus and RA began, my rheumy said all of my symptoms could be the beginning of ulcerative colitis. Nothing about this has been discussed since, but, it just proves we have to be on guard about EVERYTHING, doesn't it?

We can only hope and pray that the treatments they decide to use for you will get things under control. Stay strong!
Audrey Ann
Lupus and RA and LOTS of Medications!


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