Hi Nicole, Welcome to the group. I'm glad you decided to come here and get some support and ask some questions. First of all. Take a deep breath! I know it isn't easy but try not to get to worried. For one thing even if you do have lupus there are some great meds out there. It isn't the death sentence that it used to be. Ok now having said that, perhaps your doctor overlooked the ANA which is medium more then super high. There are people that have Lupus with a negative ANA and people who don't have Lupus with a possitive ANA. So a lab test is only one of many tests and symptoms that they go by.
It usually takes months to years before the doctor will say yes you have it or no you don't. They usually treat symptoms with drugs before they make a determination. The aching fatigue and rash could be signs of an auto immune disease or than again it could be somthing else. I'm glad you are going to see a rheumy soon though.
I can give you a few suggestions on what to take to see the rheumy. First if possible take pictures of any rash you have because many times it's gone by the time you see the doctor. Also keep a note book. Take your temp 3 times a day and write it down. Lupies have a tendency to run a little fever off and on.Write down anything out of the ordinary that happens. Even if you have a sore toe. (i'm serious) what doesn't seem like anything to us may mean something in a long run. Any joint pain, loos of appetite, increased appetite. If you loosing any hair brushing it sores in your mouth or tongue. headaches and if so where are they located. Get your family history as much as possible. It doesn't matter if they have lupus or not. There are a lot of autoimune disease out there. Your breathing problems could be from the fact that it's humid out and everything is blooming. but you need to be sure to put that down as well. Do you have forgetfullness? joint swelling? I know with all this you have anxiety but is it more then normal? Have you felt like you had the flu lately? Lots of us start off by feeling like we had the worst flu in our life. Just keep your notes close at hand. Don't count on the fact that you will remember everything because you probably won't. In fact I made me a copy and left a copy with the doctor. Ask the doctor for copies of your lab work so you can keep your own records to formiliarize yourself with them. If you are lucky you will get a good rheumy right off the bat. If you are like most of us it will take some serching to come up with one you can work with. If you aren't feeling well than they need to give you something to help you weather they have answers or not. Just try not to get to frustrated it is a long process. Just keep coming here and asking questions. Some one will be able to come up with an answer to almost anything you ask. There is a HUGE support system here. Weather you have it or not you will have lots of friends here to help you get through it.
Again I just want to welcome you I look forward to hearing what your rheumy has to say
Possible sclero. stage 4 COPD w/CHF, Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12
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