Lupus is SUCH a huge topic that it is really hard to fit everyone in a familiar picture. Lupus can cause so many different issues that it makes it really hard to guess at. One thing that might really help, since she does have a positive ANA is to find out the "pattern". There is a post about
that in "Lupus Resources" . . . link in my signature. That pattern can be suggestive of certain dx . . . but is not necessarily definitive.
I should have mentioned above . . . that plaquenel can take a LONG time to build in your body. It's full affect can take 6 months. Thats why a doctor will treat with prednisone short term while the body builds the plaquenel. The prednisone is often strated high and tapered after a certain lessening of symptoms occurs.
Hang in there!! It really can take a LONG time to get things figured out. Some these diseases overlap and she may actually have 2,3,4 different overlapping diseases.
Some of the symptoms do sound like myositis (muscle wasting and weakness).
Make sure she records ALL her symptoms so that she can bring a comprehensive list to her doctor visits. We tend to leave out things that seem small and these "little" symptoms can really help a good doctor figure things out.
Sorry I can't be more help . . . but make sure to read the info in the "Lupus Resources" thread. There are some great suggestions there from the various members here.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator