Posted 6/7/2008 2:24 AM (GMT -6)
I recently had another low ACTH and its been consistently low for over a year now and another ACTH stim test that showed that my pituitary is not producing enough ACTH to stimulate my adrenals to work. This is called secondary adrenal deficiency.
Of course, my male endos that think, despite my pigment problems, that my endo problems are insignificant--and they aren't (on the stim test, and abnormal response is a doubling, and my septupled--quite abnormal).
Anyway, of course the second thing, when confronted is to blame it on pred tapers, though I haven't had one since January. Has anyone else had problems with a sluggish pituitary?
This is a serious problem because the adrenals will shrivel up and not work anymore, and I have some physical signs that that may have occurred in the past. It also means that I might not actually be as hypothyroid or maybe more hypothyroid than suspected, they are supposed to treat the pituitary first.
So any ideas and experiences with this problem would be appreciated. I'd like to know what treatment you take, if you have the problem. I may have to get my family doc to treat it, because I don't have a good endo.
I now know why I'm falling asleep all the time (i asked the endo if it could possibly be due to my endocrine system and she said no, which shows how lousy she is, and she doesn't do any of my labs fasting, though she is supposed to. She is very nice, just not very good. I think really she is afraid to treat me because of the AI disease. I hope that's what it is, otherwise she's really incompetent.
I'm trying to find a better doc and will probably end up at an alternative medicine place.
Well, thanks for any help you can give and I hope this post finds everyone doing okay.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn