Posted 6/15/2008 8:30 PM (GMT -6)
Hi there, and welcome!
I'm sorry you are dealing with kidney issues and lupus. YOu've had it a long time haven't you. Good to hear it's all stable right now!
well, this is a topic that I have to have with my doctors on a yearly basis it seems. I'm also on Azathioprine. 100mg daily. I have been for over 6 years now. I'm getting varying advice from doctors on this drug and pregnancy. Some say it's okay, but I have to really watch myself, and others say I'd have to come off it..... Thanks guys. That really helps.. NOT.
I don't have kidney issues with my SLE. Never have. However, with my APS (blood clotting disorder), pregnancy is not recommended. I have APS pretty severely. The likelyhood of me even being able to conceive is small. Carrying to term is unlikely.
Lupus presents so many challenges for us when we're not pregnant. The challenges compound greatly when we are pregnant. My gynocologist is a high risk specialist with many lupus patients. She recommends a full and true remission (off all medication)of SLE for at least 9 months before even starting to try to conceive. Pregnancy is risky even for healthy, non-lupus women!
I would love to be a mom, but I know I never will be. Unless God has other plans! Adoption is out for me too. I can't look after myself some days, so how can I look after a baby, child, teenager, etc? For me, I don't think it's in a child's best interest to have me as a mom. Wow. That made me really sad typing that sentence out just now.... Anyway... It's a personal decision that you have to think about very seriously and with a lot of knowledge and advice from your doctors. Just remember how hard it can be to take care of just you. Add a pregnancy, baby, to the mix... Can you do it? You have to ask those hard questions and be totally, 100% truthful about it.
I know you'll get a lot of responses about your questions. A lot of varying opinions, and good information. Glad to have you here!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus