First rheumy appt tomorrow- any specific things to ask??

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New Member

Date Joined Jun 2008
Total Posts : 18
   Posted 6/16/2008 5:54 AM (GMT -6)   
Hi again everyone,

Thanks for your support so far, it has been much needed and helpful! I had a rough weekend and was sent home early from work. Everything hurt and itched, and most parents don't want you taking care of their children when you look like you're been hit by a train! Haha.... it was very nice to come home and sit on the couch and do nothing but watch QVC and nap.

So tomorrow is my first rheumy appointment, and I was wondering what things I really need to address. Do I come right out and say "I think its lupus?" I made a list of all my symptoms, I took some pictures on my phone of the eye rash/edema, I have copies of my recent bloodwork, copies of my CT scan films, and a list of questions. I know not to really expect answers, but should I expect meds to be started? Do I need to fast for any of the blood tests they may do? Any specific things to ask? Any insight would be much appreciated!!! Thanks!!!!

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/16/2008 8:53 AM (GMT -6)   
RN, it sounds like you are very well organized for your visit and have done pretty much everything you need to do. Make sure the doc sees your list of symptoms and that you include every symptom - even the ones that seem not related or might seem to little to list.

Also, go to the appointment without make up and without making yourself look too great. That way the doctor can see your skin and your hair without too much stuff on them.

I'm not sure if you should say you think you have lupus (some docs are okay with that and others aren't). You could say that your primary doc suspects lupus and that is why your appointment was made. I hope you get a great rheumy who is very thorough and listens well. Your fist appointment should last a while because the doc should do a very very thorough history and intake of all your symptoms.

I hope you'll let us know how it goes when you get a chance. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 6/16/2008 5:33 PM (GMT -6)   
You don't need to fast for the blood tests that the rhuemy will order. Unless the rhuemy thinks you need to be on pred you probably won't get meds your first appointment rather your doc will take a very thourough case history and run his own tests. Usually your second appointment is shortly after your first and that is when the doc scripts your meds. When I first went to a rhuemy I was so afraid I had Lupus that I refused to use the word. He figured out that was what I was afraid of though and very early in the appointment looked me right in the eye and said We need to wait for the test results but this is not Lupus I would stake my reputation on it (He was right it was a systemic form of RA that in the early stages looked and felt an awful lot like lupus). You can choose to introduce the idea of lupus or not based on whether you want his early assessment.
Good luck and I hope you feel better soon.

Regular Member

Date Joined Oct 2007
Total Posts : 323
   Posted 6/16/2008 6:04 PM (GMT -6)   
RN4kids .. It sounds like you have all togeather I really don't have anything to add. Wanted to wish you Good Luck. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     

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