Welcome to the forum.
*sigh* I'm so sorry you are so young and having to deal with all of this medical stuff. I'm glad your mom is helping you get to the right docs to help get things figured out.
A lot of people with Lupus also have allergic reactions to many things . . . so it is quite possibly a combination of problems causing your symptoms. The swelling in your throat and tongue is very scary and I hope you'll keep us posted on that. Do you carry and epi-pen so that you can self inject if you need to??? This can be an allergic reaction to any one of numerous things from food to bug bites.
I'm sorry there is no way to give you a summary of lupus issues . . .its a huge topic and each of us are affected very differently. Some have only kidney issues (that's enough all by itself) . . . and some have many overlapping conditions and symptoms. Lupus can affect most any part of the body and so it can be difficult to figure out what symptoms are from the Lupus and what are from another issue or illness. But by and large, the rheumatologist will treat the symptoms. It can take a while to figure out meds and get everything adjusted and things can change from day to day . . . but you will get so you are very tuned into your body and your needs. It just takes time.
You are smart to educate yourself. The more you know, the more you will be able to help your doctor and yourself. There are some very helpful and supportive folks here . . . so if you have any specific questions you don't see addressed in recent topics, ask away.
"Lupus Resources" (link at the end of my signature) has some great info to start with and Lynwood gave you some good links too.
There is a recent new member who's 6 year old daughter was recently diagnosed. There are also a few teen and young adult members here.
Keep us posted!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator