Posted 6/19/2008 8:29 PM (GMT -6)
So sorry to hear about this new dx. It is a shocker when you get it. But sure does help to know what is causing all the fatigue, pain, etc.
Don't be in a rush to get off the prednisone. If it works to keep you feeling better, then stay on it. Going up and down and up and down on it will only make your body more suseptable to flare ups. Finding the perfect dose - as low as possible to keep the symptoms away - is the trick.
Actually, being on predinsone will help your chron's too! You might find that a lot of your symptoms go away if you stay on prednisone. Your AS might respond really well to it also. It's a great medication if you need it. But we all understand the negative side effects too.
I was tested for AS a couple of years ago. I was having HORRIBLE sacroiliiac joint pain. The tests came back negative for the antibodies, and a bone scan diagnosed me with Sacroiliitis (inflammation of the SI joint). I haven't had a flare up of it for over a year now. Thank goodness. The pain is enough to make me mental!!! I'm sure you know what it's like!! do you get really bad neck pain with your AS?
I'm glad you touched base with us Ides. You're in good company as you well know!!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus