I have Ulcerative Colitis and have been having weird symptoms so my gastro doc sent me to a rheumatologist today that was one of the crustiest crotchetiest people I've ever met. So I am not sure whether to go see another rheu doc or just let it go. How do you get confirmation of Lupus? My biggest complaint over the past six months has been unbearable fatigue - I have fallen asleep at my desk several times over the past few months. I also have had chronic hives and several other strange rashes that just popped up for no reason on my face, chest, stomach and back (no "butterfly" rash.) I get sores on the roof of my mouth and it makes it very painful to eat. I have joint pain - my back has been hurting a lot lately and the crotchety doc today said it might be the spondylitis or whatever but it is treated with Remicade which I take anyway. My hands hurt a lot, and every few days my left hand hurts like it has been hit with something so I can't straighten it out. The lymph glands in the back of my head swell all the time for no apparent reason.
I am not saying I have Lupus, I was just hoping the doc today would be more helpful. He said what I have is "painful joints" and that you can't have arthritis unless you are swollen for several days and red. Huh? I am tapering off of Prednisone right now for an UC flare so the "painful joints" has been a little better but before then it had gotten pretty bad.
Thanks for any insight!!
34 year old female, Diagnosed 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 10mg (tapering), Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!