Jumping over here from the UC board. I was googling and an old post came up from the lupus board about kidney disease so I thought I might ask a couple of questions, if that is ok?
I was dx'd with Minimal Change Disease after a biopsy 09/07 though recently my Nephrologist thinks it could possibly be FSGS b/c I am not responding as well as I should to the meds, which basically means an eventual kidney transplant.
My current meds are below and the pred was @ 5mg but my colitis flared up so I had to go up to 40mg a day and from 1.5 weeks ago my colitis is doing much better (thank goodness).
I am thinking of pushing to try Cellcept, the neph had mentioned it before and I wanted to see if anyone else had taken Cellcept and what your experiences were?
Did any of you not respond well to prednisone/ace inhibitors but someothing else? If so, what were your meds?
I was thinking Tekturna/Lipitor/Pred combo would work really well for me, but I need to discuss getting on Lipitor (I took it once before a few years ago and had normal ankles, so I think that would help).
I have also taken lisonopril and simvastatin prior to the Tekturna.
my proteins were 4.7 @ dx. then 3.2 then 9.6, then around the 3's went down to 2 and last one was 2.6. However, my albumin went from 2.4 to 2.8 which is good.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!
Post Edited (Beth75) : 6/27/2008 2:23:09 PM (GMT-6)