Any given blood test is just a "snapshot" . . . it's like taking one frame out of movie (so my rheumy says). There are several members here with Lupus and no positive ANA. A couple of them actually had a kidney biopsy which was positive for lupus. It seems like there are more "sero negative" lupans than once thought.
I'm glad you have a doctor who will treat your symptoms. Lots of us fall in that category. I have never had a positive ANA and I have had one doctor say "Lupus" and others say "NO" . . . but they are still insistent that I will take plaquenil for my entire life. I did go off of it for a few months and got into real trouble.
It is WAY great that your doc is taking your symptoms seriously and plaquenil is a great "first guns" for your symptoms. It does take a few months to build fully in your system and you need to have your eyes checked regularly by an opthomologist. . .. but it is a pretty safe drug.
I hope you are able to lower your pred dose soon. Glad you are feeling better!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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