I also understand exactly what you're saying. I hate how lupus robs us of special moments in our lives. It happens way too often. I often feel like I'm missing out on so much of what life has to offer me in the way of exploring, travelling, spending time with family outside. We always have to weigh the pros and cons even for a simple picnic..... I don't have children (thanks to lupus. Another "loss" due to this blankety-blank disease). But I can understand and empathize with what you had to endure and feel. I'm sorry Hippi. ((((hgus)))).
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus