Welcome to the forum Puccini,
I'm sorry you are having such a hard time.
The neurontin is usually for nerve pain. Is your hip pain caused by a trapped nerve in your back?? Mine is and that can be significant pain and interferes with my sleep. I work hard on sleep hygiene because that is key to healing. Our body repairs itself in our deep sleep and if you aren't getting good long blocks of sleep, its hard to recover.
Plaquenil takes several months to fully build in your system . . . not sure how long you've been taking it. I'm wondering if your doctor has talked about
adding anti-inflammatory meds to your mix. Sometimes that is very helpful.
Getting the right combination of meds really does take some trial and error. Don't give up!! You'll get it. Most of us do not press for a definitive diagnosis. . . .we care more about
treating the symptoms. Lots of docs are very hesitant to label the disease if they aren't absolutely positive and they are doing you a HUGE favor by NOT getting the L word into your medical records.
There are some helpful links at the end of my signature.
I hope you make some good friends here . . . its a great place to ask questions . . . lots of informative members too!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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