In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Thanks for your response,and for your support.
I got tested for all that and actually I was taking baby aspirin and inyections of lovenox, also I am taking prednisone, folic acid and precare conceive vitamins.
Everything was going fine, I went to see my reumathologyst and nefrologyst as well and everything seemed fine, so I don't know exactly the reason of my miscarriage, next week I have appointment with my IVF doctor and I will ask him exactly what he thinks, also I ended up having a natural miscarriage so they recovered the sac with the baby inside even the baby was so little they still are going to do tests in order to know what happenned, my doctor told me that sometimes they can tell what was wrong or if a chromosome was not developed, sometimes they can't tell. My natural miscarriage was two weeks ago so this is the moment when you have a lot of questions and any answers.
I have hope than me and my husband are going to have a baby, he is very healthy and even with my lupus I have been stable for the last 4 years.
I am glad I found this forum.
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Thanks for all your replies and it really helps to share our stories because at the beginning I felt I was the only one going through all this.
Ginny, my tests are positive for the antibodies that Redrose mentioned that's why I was on Lovenox that it is a blood thinner and also everyday I take baby aspirin but during the pregnancy I used the Lovenox everyday in order to avoid clots. So I don't know exactly what happened. Thanks for your words!
Stacie and hippiemom thanks for your support and I have been thinking of going to a therapist or counselor, there are some days that I don't know where to start but I know time helps and I need to be positive and have faith.
I am so sorry you lost your baby. The pain will never go away, I know. But it gets easier and its ok to think about the what might have beens. I, too, have lupus, diagnosed after 2 healthy daughters, a son stillborn with strep B, a dx of APA, high anti strep antibodies, and a fight for a reason for 5 eight week miscarriages. Finally, a dx of anticardiolipin antibody syndrome, way back before it was known as antiphospholipid antibody syndrome: APS. My immunologist and an infertility specialist I saw in NYC, both said had I been treated after the first miscarriage, my odds would have been greater. I had high antibody levels. As it was explained to me, antiphospholipid antibodies are large, and they circulate in a mother's blood stream, until the placenta is formed, when they literally are too large to fit through the tiny blood vessels in the growing placenta, cause larger and larger areas of the placenta to infarct, and the baby fails to thrive, and then is miscarried. The tx for me was heparin, prednisone and baby aspirin but I was found to have intrauterine group B strep and staph and became septic, and I was finally given no chance of carrying a healthy baby to term. So,when I turned 40, I gave up trying. I was so determined to have another child no matter what God said, and truly felt that if I got pregnant just ONE more time....... it was a chance. I have two daughters both struggling with infertility, one with endometriosis and one who had a miscarriage in July, and because of my hx, went right to a reproductive endocrinologist high risk OB and was given a prophylactic baby aspirin (which acts as an antiplatelet anticoagulant, that causes platelets to be less sticky) and who is now 22 weeks pregnant with a healthy baby girl named Avery.Thank God. My son would have been 20 on July 19th. Please find a dr. who is willing to order every blood test available on the face of the planet for you. The specialist told me the antibodies can disappear over time and recommended regular blood checks. Since I was dx. with lupus after a positive ANA, my immunologist does blood work every 6 months and I am on a baby aspirin and prednisone 5mg every day or I can't walk because of ataxia and muscle weakness. I am so sorry for your sadness, and I know how much you and the baby's daddy wanted that baby. After my son's loss at 20 weeks, I went to Share, a monthly support group for people who lost children through miscarriage or neonatal loss. It helped me immensely, and I am nurse who had a big support network to start with. Hugs and prayers for comfort for you and your family,
I just wanted to share an update about my health and my doctor's appointments. We went to see our IVF specialist and he told us that there's no yet an explication about my miscarriage, we are still waiting about the chromosomes results but he said that maybe we are not going to have any explanation there.He told us that I didnt have clots formed so he said that miscarriage was not related to Lupus. Today we went to see my rheumatologist and he told us the same thing because he said that my blood work and all my tests were fine while I was pregnant, all the antibodies were in good level so he said that the miscarriage was not related to lupus. As he said with all these we have more information and now we know that during my pregnancy I was doing fine and I didn't have any flare up. All these make us feel better because at least it looks like that the miscarriage was not related to lupus of course it is really hard and it is another thing that we have to live with but I have hope and confidence that in a future I will be fine.
I just wanted to share my update and I still have to go with my neprhologist so will see what he has to say about all this, and there are sometimes that we dont have answers and maybe will never know why things happen. We just have to take care of ourselves and of course take all our medications!
Today I feel better and like my husband said it is just one day at a time.Talking to all of you and sharing my feelings and situations helps me. Thanks
Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.