lupus and endometriosis

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Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 7/7/2008 10:07 PM (GMT -6)   
Hi, I was just wondering if alot of women out there with Lupus also have endometriosis.  I've been having some issues for about the last 4 months and from what I can gather by research on the internet (trusted websites only) some of the signs may be pointing that way.  I do have an appointment with my gyny in September, which is a few months away, but I'm guessing this will give me more time to gather more info to present her when I do get to see her.  Right now its during my cycle and I'm barely bleeding at all.  That's the way it's been for the last few months.  I have severe cramps a few days before and the day(s) its going on, but hardly any bleeding.  Actually, it might last a day and then its gone again.  Thats not normal for me at all.  I'm done being descriptive.  Just let me know.  thanks!
"Challenges make you discover things about yourself you never really knew."
SLE and Class II Lupus Nephritis

Regular Member

Date Joined Jan 2008
Total Posts : 102
   Posted 7/8/2008 6:31 AM (GMT -6)   
I have endo as well but my periods were very heavy and painfull. I had a IUD put in over a year ago and they have gotten better. I hope you get some answers from your doctor.
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.

Regular Member

Date Joined Oct 2005
Total Posts : 251
   Posted 7/8/2008 8:37 AM (GMT -6)   
My endo was the start of the downward health spiral for me. My GYN told me recently that there are studies out now saying that endo is definitely I think you will see many of us have it because of the fact that if you get one you will likely get more autoimmune diseases.

My issues was more like JessieRose....I had a period for 3 months straight and was having severe bloating and cramping. I also was having severe pain with BMs. After a laprascopy, I felt so much better.
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 7/8/2008 7:55 PM (GMT -6)   
Jeanie it is funny that you should mention this. I just underwent a colposcopy this morning as I have had three papsmears in a row come back abnormal and as I had a hysterectomy almost three years ago, where my cervix was, there are four spots of something. He is testing me for the HP Virus, but feels that it is just a virus and not cancer. Also I am in menopause which I thought was from the hysterectomy, but no, it is from the Lupus. The gyn. said that the Lupus has caused my ovaries to fail which in turn put me into early menopause, (I am only 39). So now we wait to find out what the results of the colposcopy are and the bloodwork.
I had endometriois 13 years ago and had an ablasion done then, then it came back with a vengance 2 and a half years ago and holy smokes it was down hill from there. I was diagnosed with Lupus after my hysterectomy, very shortly after. So I can say it has caused me some grief,lots of grief in fact. We are praying that it isn't cancer and is just a virus that will go away on its own.
Good luck with your problem, I hope you get some relief.
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 7/8/2008 11:10 PM (GMT -6)   
I recently hemmorhaged to the point of having to be transfused with 2 units of packed red blood cells! I know there is a connection between hormones and lupus! I was in the middle of a horrible flare! Judy

Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 7/9/2008 8:31 PM (GMT -6)   
Greetings, Firebabe!

I had endometriosis, too, and I really believe all the new info coming out that endo might be autoimmune. It really does make sense. I had laproscopy and ablation done and felt great for about a year. then the endo came back but it was 10 times worse. I had hysterectomy six years ago and things are much better! Using an IUD with endo can be very painful for most with endo. Be careful about this option. Birth Control pills really helped me with my endo but they eventually stopped working and I just had a continuous period. It was awful. The fatigue was terrible, too, just like the lupus fatigue each month!

Good luck, sweetie!
Audrey Ann
Lupus and RA and LOTS of Medications!


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